Izindaba ezimnandi ezinganeni ezine-sickle cell anemia kanye nezifo zegazi eliwufuzo, likhona ithemba lokwelapha

 Udokotela ovelele uthe namuhla uchungechunge lwemiphumela yomtholampilo luzoshintsha ukwelashwa kwezifo zegazi eliwufuzo futhi lwandise iminyaka yokuphila yezingane ezinesifo se-sickle cell kanye ne-thalassemia. Udokotela watusa ukwelashwa kokufakelwa komnkantsha

U-Rabea Hanna, MD, udokotela wegazi wezingane, i-oncologist kanye nochwepheshe bokufakelwa komnkantsha eCleveland Clinic e-US, uthi izinguquko ezinkulu zokwelashwa zizokwenzeka eminyakeni emihlanu ezayo kuya kwe-XNUMX, okuhlanganisa intuthuko ebalulekile kumasu okufakelwa komnkantsha, ukwelashwa kwezakhi zofuzo kanye nemithi. .

Kusho uDkt. UHanna, enkulumweni yakhe phakathi neNgqungquthela Yezempilo Yama-Arab eyayiseDubai, wathi izindlela zokwelapha ezivame kakhulu namuhla, ezihlanganisa ukumpontshelwa igazi nemithi, zinciphisa izimpawu zalesi sifo futhi azelapheki, ephawula ukuthi iziguli eziningi zifela esibhedlela. iminyaka yobudala encane, futhi yenezela: Isilinganiso seminyaka yokuphila komntwana okutholakale ukuthi inesifo se-sickle cell siyiminyaka engu-34 kuphela, ngaphandle uma efakelwa umnkantsha, ngakho kufanele sinikeze ukwelashwa kokwelapha, futhi okwamanje akukho ukwelashwa okutholakalayo ngaphandle komnkantsha. ukufakelwa, futhi imiphumela emihle kakhulu ivela kumnkantsha onikelwa umzalwane noma udade.” .

Wachaza uDkt. UHanna uthe eminyakeni embalwa edlule kube nentuthuko enkulu emkhakheni wokufakelwa izitho zomzimba, ngokwethembela emalungwini omndeni acishe afane, njengomama noma ubaba, onengxenye yofuzo lwengane, kucatshangelwa ukuthi lokhu kunikeza izingane eziningi ithuba lokululama. ngokufaka umnkantsha wamathambo ongasebenzi kahle abanawo. .

Ukwelashwa okusha kuzothakazelisa kakhulu emazweni amaningi ama-Arab, lapho amazinga e-sickle cell disease kanye ne-thalassemia ephakeme kunaseYurophu noma eNyakatho Melika. Zombili lezi zifo zibangela ukungahambi kahle kwe-hemoglobin, ingxenye ebhekele ukuthutha umoya-mpilo kumangqamuzana abomvu egazi.

Uchwepheshe we-hematology yezingane kanye nokufakelwa komnkantsha esibhedlela saseCleveland Clinic uthe i-thalassemia yenzeka emazweni aseMpumalanga Ephakathi ngamanani aphakeme kakhulu kunase-United States, okubonisa ukuthi amazinga e-sickle cell anemia ephakeme kancane, ikakhulukazi eSaudi Arabia nase. Wanezela: "Umuntu oyedwa kwabangu-12 e-UAE uthathwa njengomthwali wofuzo olubangela i-thalassemia."

Kuqinisekiswe uDkt. U-Hanna uthe izivivinyo zokufakelwa komnkantsha ngamunye, i-Haplo-transplants, zisesigabeni sazo sesibili nesesithathu, ukuhlola ukusebenza kwazo kanye nemiphumela emibi, ephawula ukuthi iCleveland Clinic ibambe iqhaza ocwaningweni lokuqala olwasebenzisa i-modified chemotherapy ukusiza ukulungiselela. iziguli zokufakelwa.

Ngakolunye uhlangothi, ukwelashwa kwezakhi zofuzo kusetshenziswa i-DNA okuguquliwe ngokufaka isakhi sofuzo esisebenzayo ukuze sithathele izakhi zofuzo eziguquliwe ezibangela ukuphazamiseka kwegazi kunikeza amathuba amakhulu okwelapha kunokufakelwa komnkantsha.

Imiphumela yocwaningo olwenziwe phakathi nesigaba sokuqala sovivinyo, olwalubhekene nalesi sici sokwelashwa kwezakhi zofuzo ze-thalassemia, "yayithembisa kakhulu," ngokusho kukaDkt. UHanna, naphezu kokuba esesigabeni sakhe sokuqala, ephawula ukuthi kuzothatha isikhathi ngaphambi kokuba atholakale ukuze athole ukwelashwa.Ngaphambi kwe-US Food and Drug Administration, kuyilapho abanye besalinde ukugunyazwa, futhi lapha kufanele kuqashelwe ukuthi lezi hhayi imithi yokwelapha, kodwa inganciphisa ukuqina kwesifo.”

Izinkulumo zikaDkt. U-Hanna, phakathi nenkulumo yakhe phambi kweNgqungquthela Yezifo Zezingane eceleni kweNkomfa Yezempilo Yama-Arab, lapho odokotela abaningi abavela ezibhedlela zaseCleveland Clinic babambe iqhaza enkulumweni, abashintshana futhi babelana ngolwazi nolwazi lwabo nababekhona. Kuyaphawuleka ukuthi iCleveland Clinic inobudlelwane obudala ne-Arab Health Exhibition and Conference, futhi inikeza imvume yokuqhubeka nemfundo yezokwelapha ngezifundo ezikhethekile ezibanjwe phakathi nengqungquthela.